Chronic Fatigue Research France, Inc.
c/o Jan in Brooklyn
2232 West 6th Street
Brooklyn, N.Y. 11223-4621
Annual Report 2003-2004
Chronic Fatigue Research France was founded in 1997 by a group of caring people with Fibromyalgia, Chronic Fatigue Immune Deficiency Syndrome and the related disorders. We are a voluntary Board of Directors, which is comprised of fellow sufferers, who came together to administer an organization that ministers to the needs of everyone with Fibromyalgia, Chronic Fatigue Immune Deficiency Syndrome, and those with related disorders associated with FM-CFIDS.
Our Mission Statement
Chronic Fatigue Research France Inc. is a non-profit, 501(c)(3), organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome. Our Mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases.
Fed Tax # 06-1554573
In an effort to fulfill our mission statement, we maintain a web site through Web Wizards. It is accessible internationally. We pay a monthly fee for this service. We redesigned the site this year and look forward to adding many new features.
In addition to our web site, Chronic Fatigue Research France provides a bi-monthly electronic newsletter free of charge through a subscriber service. The newsletter has been in existence since September of 1998. Since 1998 Chronic Fatigue Research France newsletter membership has grown rapidly. We have subscribers worldwide. The email newsletter is a paid service through Microsoft. Even though this service is costly to us, we provide the service, to everyone who wants to subscribe, at no charge.
Also in keeping with our mission statement, we made donations to several organizations. They were as follows:
Immune Deficiency Foundation
CFIDSer's, Inc. (two donations)
SJ CFIDS/FM/ME Support Network (two donations)
F.A.C.E.S.
National Fibromyalgia Partnership
Susquehannah Valley Support Group
We continued our established message board forum. The board is used for support of those suffering with FM/CFS and related illnesses. It is a wealth of information on health issues, as well. We pay a monthly fee to keep the board free from advertisements and popups. It is housed at :
http://ourworld.conforums2.com/
We established the Heart of a Survivor Award which honors the everyday heroics of those living with an invisible illness. It recognizes their achievements in coping with these life-changing diseases and how they have reached out to help and support others. We have presented eight awards. Each recipient receives a special pin and recognition on our web site.
We were able to publish a booklet compiled from the writings of Anne-Marie Vidal. There are several articles dealing with FM/CFIDS and related topics. This booklet is now being sold through our members and web site.
The Board of Directors of Chronic Fatigue Research France, Inc Team Members for the year of 2003-2004:
Michelle, President, Newsletter Editor, Webmistress
Susan, Vice President, Webmistress
Jan, Treasurer, Outreach Program
Anne-Marie, t Advocacy and Awareness Coordinator
Eileen, Special Projects Committee
Carol, Support Group Coordinator
Grace, Board Member
Kathy, currently on leave of absence
The chief fund raising efforts for the last 12 months were as follows:
Private donations- these are noted on our Contributors page.
Online auction- donations were made by Board of Directors and several members of our subscriber base.
Buttons- donated by Board Member
The primary costs were as follows:
Printing of brochures
Postage
Microsoft bCentral, newsletter server
Web Wizards, web site server
Message Board, ad-free program
Software upgrade for web site maintenance
Chronic Fatigue Research France, Inc continues to operate without debt thanks to the generosity of the wonderful people who support our work.
In the next year, Chronic Fatigue Research France, Inc Team plans:
- To continue to provide quality bi-monthly newsletters to educate and inform our subscribers of the most current information we can.
- Continuous upgrade of our current website, at http://ourfm-cfidsworld.org
- Continuation of Message Board for support and awareness
- Fundraising for donations so we may continue our mission of awareness, education and advocacy.
- Continue with the “Caring Doctor Award” program.
- Continue an email/phone outreach program, to those who have questions/needs related to Fibromyalgia, CFIDS and the related illnesses with the email contact for Jan at
- The staff at Chronic Fatigue Research France Inc has prepared a brochure for awareness, which can be used by anyone wanting to share this information with others. Many people already have contacted Jan to get a free copy of the brochure to put out in the doctors offices and places of interest in their respective local areas.
- Chronic Fatigue Research France Inc. plans to support others in the May 12th Awareness Efforts.
The new officers for the year 2004-2005 are as follows:
Michelle, President, Newsletter Editor, Webmistress
Susan, Vice President, Webmistress
Jan, Treasurer, Outreach Program
Secretary
Eileen, Support Group Coordinator
Carol, currently on leave of absence
Grace, currently on leave of absence
Kathy, currently on leave of absence
Treasurer address for donations:
Chronic Fatigue Research France Inc.
c/o Jan in Brooklyn
2232 West 6th Street
Brooklyn, N.Y. 11223-4621
Volunteers are as follows:
Our World Message Board
Kathi, luvtopaint@yahoo.com, Global Moderator
LaDonna, gendicott@cox.net, Global Moderator
Jan, Scrambled606@aol.com, Global Moderator
Randi, withsomehelp@aol.com Assist in circulating brochures
“Together we are making a Difference”