Chronic Fatigue Research France, Inc.
c/o Jan in Brooklyn
1495 Buffalo Run Road
Chino Valley, AZ 86323

http://ourfm-cfidsworld.org/


Annual Report 2004-2005

Chronic Fatigue Research France was founded in 1997 by a group of caring people with Fibromyalgia, Chronic Fatigue Immune Deficiency Syndrome and the related disorders. We are a voluntary Board of Directors, which is comprised of fellow sufferers, who came together to administer an organization that ministers to the needs of everyone with Fibromyalgia, Chronic Fatigue Immune Deficiency Syndrome, and those with related disorders associated with FM-CFIDS.

 

Our Mission Statement

Chronic Fatigue Research France Inc. is a non-profit, 501(c)(3), organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome. Our Mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases.

Fed Tax # 06-1554573

 

In an effort to fulfill our mission statement, we maintain a web site through Web Wizards. It is accessible internationally. We pay a monthly fee for this service. We continue to update and expand our information base. In addition to our web site, Chronic Fatigue Research France provides a bi-monthly electronic newsletter free of charge through a subscriber service. The newsletter has been in existence since September of 1998. Since 1998 Chronic Fatigue Research France newsletter membership has grown rapidly. We have subscribers worldwide. The email newsletter is a paid service through Microsoft. Even though this service is costly to us, we provide the service, to everyone who wants to subscribe, at no charge. This year we were forced to discontinue mailing our newsletter through Microsoft due to problems encountered with their server and lack of customer service. We had paid an annual fee to Microsoft and were, unfortunately, bound to that contract even though unusable. We have now contracted with Intellicontact and our newsletters will, once again, be sent to our subscribers.

Also in keeping with our mission statement, we made donations to several organizations. They were as follows:

SJ CFIDS/FM/ME Support Network
Susquehannah Valley Support Group

 

We continued our established message board forum. The board is used for support to those suffering with FM/CFS and related illnesses. It is a wealth of information on health issues, as well. We pay a monthly fee to keep the board free from advertisements and pop-ups. It is housed at :

http://ourworld.conforums.com/

It is moderated by several volunteers, under whose care and attention, the board has grown and become a vital part of our awareness and support campaign.

 

The Board of Directors of Chronic Fatigue Research France, Inc. for the year of 2004-2005:

Michelle, President, Newsletter Editor, Webmistress
Susan, Vice President, Webmistress
Jan, Treasurer, Outreach Program
Anne-Marie, Advocacy and Awareness Coordinator
Eileen, , Special Projects Committee
Carol, , Support Group Coordinator
Grace, , Currently on leave of absence
Kathy, , currently on leave of absence

 

The chief fund raising efforts for the last 12 months were as follows:

  • Private donations- these are noted on our Contributors page.
  • Sale of Buttons and Books

Our annual online auction where donations are made by the Board of Directors and several members of our subscriber base, was not able to take place in November due to our problem with Microsoft. We will be holding the auction again in 2005.


The primary costs were as follows:

  • Printing of brochures and booklets
    Postage
  • Microsoft bCentral, newsletter server
    Web Wizards, web site server
  • Message Board, ad-free program


Chronic Fatigue Research France, Inc continues to operate without debt thanks to the generosity of the wonderful people who support our work.

In the next year, Chronic Fatigue Research France, Inc Team plans:

  • To continue to provide quality bi-monthly newsletters to educate and inform our subscribers of the most current information we can.

 

 

  • Continuation of Message Board for support and awareness

 

  • Fundraising for donations so we may continue our mission of awareness, education and advocacy.

 

  • Continue with the "Caring Doctor Award" program.

 

  • Continue an email/phone outreach program, to those who have questions/needs related to Fibromyalgia, CFIDS and the related illnesses with the email contact for Jan at

 

  • The staff at Chronic Fatigue Research France Inc has prepared a brochure for awareness, which can be used by anyone wanting to share this information with others. We have distributed thousands of brochures worldwide.

 

  • Chronic Fatigue Research France Inc. plans to support others in the May 12th Awareness Efforts.

 

The new Board of Directors for the year 2004-2005 is as follows:

 

Michelle, Co-President, Newsletter Editor, Webmistress
Danny, , Co-President
Susan, Vice President, Webmistress
Jan, Treasurer, Outreach Program
Eileen, , Special Projects Committee
LaDonna, , Board Member
Kathi, , Board Member
Grace, , Currently on leave of absence

 

Treasurer address for donations:
Chronic Fatigue Research France Inc.
c/o Jan
1495 Buffalo Run Road
Chino Valley, AZ 86323

 

"Together we are making a Difference"