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WELCOME TO Chronic Fatigue Research France, INC. NEWSLETTER
OUR MISSION: Chronic Fatigue Research France Inc. is a non-profit organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Syndrome. Our mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases, through education. ********************************************* We have several new areas of interest on our web site. It continues to grow as new information is made available to us. If you haven’t visited in a while, please stop by and check out some of the new links. To ease navigation through the site, the Table of Contents lists the pages where you can find new information. We have fresh ideas on the horizon and look forward to sharing them with you. Coming soon is a booklet of Anne-Marie Vidal’s writings, more Caring Doctor Awards and Heart of a Survivor recognitions. At some point this year we hope to have another fundraising effort that will allow us to make more donations to research facilities, and agencies helping those with FM/CFS and related illnesses. We would also like to announce that Carol Robertson, a member of Chronic Fatigue Research France Board of Directors, has accepted the position of Support Group Coordinator. She is a fountain of information on organizing and running support groups. A seasoned veteran in the support group field, she is available to anyone who aspires to start their own group. If you have been thinking about a support group in your area, and aren’t sure how to start, please let Carol share her excellent tips with you. You can reach her at fmsheart@yahoo.com. In parting, just a few words of wisdom… "Stop thinking in terms of limitations and start thinking in terms of possibilities." --Terry Josephson
Michelle, Editor
No funds = No research = No cure
Newsletter archives are available at our web site. Simply follow the links for the 2001, 2002 or 2003 archived issues.
********************************************* And don’t forget to bookmark the site for future visits. http://ourfm-cfidsworld.org/
**What’s new?
**Awareness Day 2003 - see what the Susquehanna Valley Support Group did to promote awareness. Many pictures add to this great event. **Fibromyalgia from a Man’s Point of View - an interesting read for any man suffering with FM. You can find the link on the Men’s Corner page. **Complementary and Alternative Medicine - a new section added to our site. You can find new links under the Treatment page. **Nutrition - another new section added to our site. You can find a link from the Treatments page.
********************************************* You can find a convenient link to subscribe at our site. http://ourfm-cfidsworld.org/
********************************************* Our message board is a place to share information and meet new friends. It is free and open to every one. Please join us. http://ourworld.conforums2.com/ Our World's message board is a place where members can share about their health problems as well as life issues. Medical research has shown that patients that belong to a support system, have a better quality of life. We urge you to come share your aches, pains and coping tips and methods for getting by! We have members there daily to answer your questions. We would like to start sharing some tips for helping us get by in each newsletter!! Jackie Fontes, Global Moderator ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ Of Extreme Importance to Me I plead with you all--no matter what your background--please help me.
Jackie Reponses may be sent to raymondfontes@sbcglobal.net
********************************************* **Taking a New Look at Pain Why do we hurt? Scientists are gaining bold new insights into the nature and dynamics of pain—and they’re racing to develop stronger, safer treatments. Here’s what the future may hold http://www.msnbc.com/news/911585.asp?0cv=KA01&cp1=1
**Fibromyalgia: Not All in Your Head Thanks to brain-scan technology, this ‘imaginary’ ailment of 6 million people is proving to be very real http://www.msnbc.com/news/912034.asp?0bl=-0
** “Functional Medicine Applications: Reversing Eight Vicious Cycles that Block Fibromyalgia and Chronic Fatigue Syndrome Healing” By Richard Podell, M.D. People with any chronic illness tend to develop a set of self-defeating vicious cycles, which conventional medical approaches too often overlook. My practice places high priority on reversing these self-defeating cycles, as they are major obstacles to healing. http://www.immunesupport.com/library/showarticle.cfm/ID/4563
**The Role of Nutrition in Treating and Managing Chronic Pain Healing from pain is like healing from any other malady, and nutrition plays a significant role in the healing process. When we consider the relationship of food and healing, there are three rules to live by. Do not put poison into your body. Give the body the best octane to run. Provide the body with the best raw materials to build new parts and repair old parts. http://www.blatmanpainclinic.com/article06.htm
**Weather Pains If you suffer from arthritis, rheumatism or any other condition that causes you chronic pain, you can probably anticipate weather changes before they occur. http://blueprint.bluecrossmn.com/article/hscoutn/103437635;$sessionid$GFUKTBIA AERXSCTYAITTMGQ
********************************************* George Carlinisms: How come wrong numbers are never busy? Do people in Australia call the rest of the world "upover"? Does killing time damage eternity? Why doesn't Tarzan have a beard? Why is it that night falls but day breaks? Why is the third hand on the watch called a secondhand? Why is lemon juice made with artificial flavor, and dish washing liquid made with real Are part-time bandleaders semi-conductors? Can you buy an entire chess set in a pawn shop? Daylight savings time - why are they saving it and where do they keep it? Do jellyfish get gas from eating jellybeans? Do pilots take crash-courses? Do you think that when they asked George Washington for ID that he just whipped out a quarter? Have you ever seen a toad on a toadstool? How do you write zero in Roman numerals? How many weeks are there in a light year? If Barbie's so popular, why do you have to buy all her friends? If cats and dogs didn't have fur would we still pet them? If space is a vacuum, who changes the bags? If you jog backwards, will you gain weight?
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**ART is a patented, state-of-the-art soft tissue system that treats problems with muscles, tendons, ligaments, fascia and nerves. Headaches, back pain, carpal tunnel syndrome, shin splints, shoulder pain, sciatica, plantar fasciitis, knee problems, and tennis elbow are just a few of the many conditions that can be resolved quickly and permanently with ART. http://www.activereleasetechniques.com/about/index.cfm
**The ART® soft tissue management system is based on scientific evidence that muscles, nerves, blood vessels and connective tissue develop adhesions within, around and between them after acute or repetitive injuries. Adhesions cause the motion of muscles and joints to be altered resulting in a wide variety of symptoms that characterize the cumulative injury cycle. http://www.grchiro.com/art.htm
**Our message board contains some useful information on ART including the experience of a gentleman who has used this technique. http://ourworld.conforums2.com/index.cgi?board=support&action=display&num=1051660713
********************************************* Linda Striker, Chronic Fatigue Research France’s friend and colleague in Cincinnati, played a special role in that city’s, first ever, Arthritis Foundation Walk on May 18, 2003, as a Fibromyalgia representative. Although unable to actually participate in the 5 kilometer (3.1 mile) walk at Sawyer Point in downtown Cincinnati, Linda did work in a booth and spent the day promoting awareness of Fibromyalgia. Linda, known for running a large FMS and CFIDS support group, and for active advocacy, was asked to sit on the planning committee for the event. While the Arthritis Foundation has many such events nationally, this was the first time that Cincinnati held one that was coordinated by Barb Prepap, who has been diagnosed with Rheumatoid Arthritis since the age of two. Barb took part in the actual walk via wheel chair with the assistance of her son, Ryan. Serving on the coordinating committee was a challenge for Linda, since like many people with Fibromyalgia, her energy is limited. She managed her duties by enlisting others in her family and in her circle of friends to actually participate in the walk, and line up sponsors for walkers. “I had to do a lot of things over the phone. I simply was not able to attend a lot of meetings.” Some members of her support group were also able to take on support activities although walking over three miles was not possible for them either. Linda was especially gratefully to her sister, Cindy Scharann who organized teams of walkers who stayed together and looked after each other during the walk. Other activities that volunteers participated in included face painting for children or helping distribute refreshments to participants. ~*~*~*~*~*~*~*~*~*~*~*~*~ Chronic Fatigue Research France would like to congratulate Linda and her volunteers for bringing FM awareness to this special event.
************************ IMPORTANT MESSAGE: The Founders of Chronic Fatigue Research France, Inc. would like to thank those of you who have supported us so graciously with your gifts of help to keep the site online and to help us reach our goal to bring up-to-date information to all who need it. We strive to educate the public, the medical community and the new sufferers of these diseases by offering information, chat rooms and message boards to bring us all together. Thank you from the bottom of our hearts!! Anyone wishing to share in the support of our endeavors may send a tax-deductible donation to the following:
Chronic Fatigue Research France Inc. ***************************************** OUR WORLD IS BROUGHT TO YOU BY: -President, Editor, Webmistress – Michelle,
***************************************** **Together We are Making a Difference - Everyone is ALWAYS welcome to help!
************All of us at FM/CFS World, Inc.*********
Disclaimer: The list owner cannot accept any form of responsibility, legal or otherwise, for the opinions and information presented on this mailing list. All information should be thoroughly examined by a qualified physician, familiar with your health care, prior to commencing any new treatments.
Copyright©2003 Our FM/CFIDS World, Organization. All rights reserved. The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, thanks to the website costs being donated, therefore most of our donations will be sent to research for Fibromyalgia and CFIDS cause, treatment and cure. |
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Copyright©2005 Our FM/CFIDS World, Organization. All rights reserved. The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, therefore most of our donations will be sent to aide in the awareness, and research for Fibromyalgia and CFIDS cause, treatment and cure. |
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