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WELCOME TO Chronic Fatigue Research France, INC. NEWSLETTER
OUR MISSION: Chronic Fatigue Research France Inc. is a non-profit organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Syndrome. Our mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases, through education. *************************************************************** A CHAT WITH THE EDITOR:
“The friend who holds your hand and says the wrong thing is made of dearer stuff than the one who stays away." --Barbara Kingsolver Friends -- it seems that we quickly find out who they are when we become chronically ill. I have spoke with, or written to, countless people who have told me the same sad story. “When I became ill, my friends disappeared.” That is why the above quote appealed to me. I truly commend any person that makes an effort to stay involved in the life of a chronically ill friend. It takes compassion. It takes bravery to face the unknown. It takes endurance to come back time and time again. To offer that type of support, no matter how many times they may stumble along the way, is priceless. If you are fortunate to have such a wonderful spirit in your life, let them know how very special they are, and how much they mean to you. May your life be blessed with friendship and love,
Michelle, Editor
**Special Note – May 12th Awareness Day is right around the corner. Don’t forget to check out the wonderful events being planned.
Newsletter archives are available at our web site. Simply follow the links for the 2001 or 2002 archived issues. *************************************************************** Chronic Fatigue Research France, Inc. ********************************************************************** You can find a convenient link to subscribe at our site. Chronic Fatigue Research France, Inc. ********************************************************************** NEWS FROM BROOKLYN On another note: A very special Friend has given me Padre Pio scapula's ......... There are a few among us that are critically ill, and with their permission and the permission of the editor I am asking that you please say a special prayer for the following: Tori in Canada On a happier note I will heading to DC May 11th! I will wear a shirt with the names of Painpal’s pals that can't make the walk so they can be there with me in spirit. I am taking brochures to distribute and my travel companion is taking a video camera. I have no idea what I will be able to film or if I will be able to get close enough to pick up the audio of the speakers but I know I will give it my best shot. Wishing you all Pain Free Days and Restful Nights. Jan in Brooklyn ~*~*~*~*~*~*~*~*~*~*~*~ Jan, at Painpal48@aol.com, is willing to listen and offer you support. Simply drop her a line and she will respond. She is a compassionate, caring woman who has suffered with the ravages of these diseases. If you need her, she is there for you. ********************************************************************** Our very own Eileen, ERzBoat, put pen to paper and wrote to the Governor, senators, et al and on April 18, 2002 was rewarded by a proclamation from the Governor declaring May 12th as Awareness Day in the State of Pennsylvania. Congratulations Eileen!! You did an outstanding job! Even one person can make a difference. If you want to make a difference stop by our site and take a look at the Advocacy page or the Government links page to get you started on your way. ********************************************************************** **Clinical trials for fibromyalgia are now recruiting. Assessing Fibromyalgia Treatments http://clinicaltrials.gov/ct/gui/c/w2b/action/SearchAction?JServSessionIdzone_ct=1xum9p1xz2&Term=fibromyalgia
** “Sick and so very tired” is an article that appeared in Macleans discussing Chronic Fatigue Syndrome. In addition to the article, you can read the results of the recent poll on whether CFS was too easily dismissed. You will find it interesting. http://www.macleans.ca/xta-asp/storyview.asp?viewtype=search&tpl=search_frame&edate=2002/04/15&vpath=/xta-doc1/2002/04/15/health/65903.shtml&maxrec=3&recnum=2&searchtype=BASIC&pg=1&rankbase=128&searchstring=chroni c+fatigue+syndrome
**When tissues don't receive sufficient blood, the cells are starved for oxygen and nutrients. Pain can result, as in headache or fibromyalgia. Although this article is not directed at Fibromyalgia in particular, it does present some interesting information. http://www.lef.org/magazine/mag2002/feb2002_report_acam_01.html
** “Neurally Mediated Hypotension: Its surgical evaluation, management and early outcome as part of the Fibromyalgia - Chronic Fatigue Syndrome” http://home.att.net/~potsweb/rosnerstudy.html
**Pain Medicine For The 21st Century A new treatment option for relieving pain goes into clinical trials to prove its effectiveness in the early months of 2002. If it proves effective in humans it will revolutionize treatment for chronic pain. http://painmanagementtheory.homestead.com/Axonal.html
********************************************************************** "Senior" personal ads seen in Florida and Arizona newspapers: FOXY LADY: Sexy, fashion-conscious blue-haired beauty, 80s, slim,5'-4" SERENITY NOW: I am into solitude, long walks, sunrises, the ocean, yoga WINNING SMILE: Active grandmother with original teeth seeking a BEATLES OR STONES? I still like to rock, still like to cruise in my MEMORIES: I can usually remember Monday through Thursday. If you can MINT CONDITION: Male, 1932, high mileage, good condition, some hair, (Who says seniors don't have a sense of humor?) ********************************************************************** ** “Severe Muscle Weakness, Fibromyalgia May Be Due to Vitamin D Deficiency” Adults afflicted with incapacitating muscle weakness and pain may be suffering from an easily treatable vitamin D deficiency, endocrinologists at the University at Buffalo suggest. http://www.ahealthyme.com/article/bellhowell/101707336;$sessionid$J5QGW0QAAAKQQCTYAITDEMQ?_requestid=10954
** “Sunlight, health, and vitamin D” http://www.abc.net.au/health/minutes/stories/s497783.htm
** “The Body's Response To Sunlight” Interesting article, not just for the relation to Fibromyalgia, but to other diseases as well. http://www.abc.net.au/rn/talks/8.30/helthrpt/stories/s496711.htm
** “Vitamin D Levels in Women with Systemic Lupus Erythematosus and Fibromyalgia” http://www.immunesupport.com/library/showarticle.cfm/ID/3170/
**Osteomalacia Symptoms Diffuse bone pain, especially in the hips http://www.nlm.nih.gov/medlineplus/ency/article/000376.htm
** “Osteomalacia as a cause of chronic pain” http://www.pulsus.com/Pain/01_01/TEAS_ED.HTM
**********************************************************************
We Will Walk for You April 1, 2002--Ms. Tracy Loeffler, President and Founder of INMFCM-Invisible ~*~*~*~*~*~*~*~*~*~*~*~ Hi everyone, You know the Beatles song, I get by with a little help from my friends? Well, I need help sending a press release to the media around the country regarding the Walk for Awareness being organized by Invisible No More, FACES and others. Anyone willing to print out an e-mail attachment (scanned by two constantly running virus protections programs) and mail to one or two local papers. Please e-mail me. I would appreciate any help. Healing Hugs, shadesofjoy@erols.com
********************************************************************** IMPORTANT MESSAGE: The Founders of Chronic Fatigue Research France, Inc. would like to thank those of you who have supported us so graciously with your gifts of help to keep the site online and to help us reach our goal to bring up-to-date information to all who need it. We strive to educate the public, the medical community and the new sufferers of these diseases by offering information, chat rooms and message boards to bring us all together. Thank you from the bottom of our hearts!! Anyone wishing to share in the support of our endeavors may send a tax-deductible donation to the following: Chronic Fatigue Research France Inc. **********************************************************************
-President – Kathy, ********************************************************************** <><><><> God Bless and Best Wishes <><><><> ************All of us at FM/CFS World, Inc.*********
Disclaimer: The list owner cannot accept any form of responsibility, legal or otherwise, for the opinions and information presented on this mailing list. All information should be thoroughly examined by a qualified physician, familiar with your health care, prior to commencing any new treatments.
Copyright©2002 Our FM/CFIDS World, Organization. All rights reserved. The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, thanks to the website costs being donated, therefore most of our donations will be sent to research for Fibromyalgia and CFIDS cause, treatment and cure. Web site hosting by:
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Copyright©2005 Our FM/CFIDS World, Organization. All rights reserved. The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, therefore most of our donations will be sent to aide in the awareness, and research for Fibromyalgia and CFIDS cause, treatment and cure. |
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