February 5, 2001 - Chronic Fatigue Research France

Chronic Fatigue Research France, Inc.

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WELCOME TO Chronic Fatigue Research France, INC. NEWSLETTER

OUR MISSION:

Chronic Fatigue Research France Inc. is a non-profit organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Syndrome. Our mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases, through education. ***************************************************************

A CHAT WITH THE EDITOR:

Every store I enter these days has a large display of hearts, cards, candy and teddy bears staring me in the face. Aside from the commercialism of Valentine’s Day, we should be reminded of those wonderful “significant others” that stand beside us everyday. It should be a time to say thank you to the person who holds you up when you are unable to stand on your own, the person who dries the tears of frustration and pain, the person who puts up with our mood swings, our forgetfulness. A time to be aware of, and understanding of, the person that feels our pain almost as much as we do. A time to remember and compliment all the little, and big, things they do everyday so that we don’t have to overwork ourselves. A time to reassure them that we remember and appreciate all the support and love they give us even when we find it hard to love ourselves.

They may not always do as we wish, or say the things we want to hear, or be the person we need at the time, but they are still standing beside us. And for that, they deserve a mountain of praise and respect.

“Love feels no burden, thinks nothing of trouble, attempts what is above its strength, pleads no excuse of impossibility; for it thinks all things lawful for itself, and all things possible.”

--Thomas a Kempis

Michelle, Editor
M32764@aol.com

If anyone would like a copy of the last issue, please email Books80@aol.com and put "last issue" in the Subject line. Thank you.

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TAKE A MOMENT TO VISIT OUR NEW SITE!
And don’t forget to bookmark the site for future visits.

Chronic Fatigue Research France, Inc.
http://ourfm-cfidsworld.org/

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LIKE WHAT YOU SEE? THEN JOIN OUR “FMily”
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You can find a convenient link to subscribe at our new site.

Chronic Fatigue Research France, Inc.
http://ourfm-cfidsworld.org/

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WHAT’S NEW AT OUR WORLD?
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Our new home has been growing as we add new links to information that can educate and help us learn to cope with our diseases. If you haven’t stopped in for a visit lately, please drop by. I have highlighted just a small portion of the information we have available.

News Page
Contains the current news on FM and CFS
http://ourfm-cfidsworld.org/news.htm

Other Medical Illness, Diseases and Syndromes, News and Research
This page indexes our medical links to the following related illnesses:

Sjogrens
Lupus
Chemical Sensitivities
GBS
Migraine
TMJ
Gulf War Syndrome
Post Polio Syndrome
Chiari Malformations
Thyroid Diseases
Digestive Disorders
Costochondritis
Seasonal Affective Disorder
Depression
Restless Leg Syndrome
Diabetes
Insulin Resistance
Neurally Mediated Hypotension
http://ourfm-cfidsworld.org/related.htm

Sleep Disorders and the Brain
http://ourfm-cfidsworld.org/sleepdis.htm

Finding a Doctor
http://ourfm-cfidsworld.org/findinga.htm

Information Links FM/CFS and Related Issues
http://ourfm-cfidsworld.org/infolinks.htm

Information Articles
http://ourfm-cfidsworld.org/articles.htm

Disability Links
http://ourfm-cfidsworld.org/disabili.htm

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LEARNING = SUCCESS
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**Headaches often plague us, so here is a site that offers information on types of headaches, treatments, prevention techniques, self-evaluation, message boards and chat rooms, transcripts online, and doctor information.

http://www.headachecare.com/

** “Lifestyle & Therapeutic Methods for Managing FMS”, From WebMD, an overview of various strategies for treating and coping with fibromyalgia, including exercise, cognitive behavioral therapy, stress reduction, and more.

http://chronicfatigue.about.com/gi/dynamic/offsite.htm?site=http://my.webmd.com/content/article/1680.51259

** “Chronic Pain: 2. The Case for Opioids”, by Daniel Brookoff, offers an insightful look into the use of opioid medications.

“There is growing evidence…that too much pain can cause damage and even death. When pain is controlled, medications for the underlying disease or disorder tend to work better.”

You may want to take this in to your doctor.

http://www.hosppract.com/issues/2000/09/brook.htm

** Welcome to Remedyfind…Sometimes being diagnosed with a health condition brings as much frustration as relief. Even with the best doctor care, many health problems just don't have clear-cut, predictable solutions. Out of necessity, many of us choose to become actively involved in our own healthcare decisions.

But making sense of all the treatment options can be enormously confusing. That's why we've created Remedyfind. At Remedyfind we've listed the different treatments (remedies) that are used for specific health conditions. By giving a number rating to those remedies you have tried, you are able to share your personal health experiences with others.

http://www.remedyfind.com/

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THE MEDICINE OF LAUGHTER AND INSPIRATION
“There’s no fun in medicine, but there’s a lot of medicine in fun.” ~ Anonymous
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Things They Said in 1959......

"No one can afford to be sick any more, $35 a day in the hospital
is too rich for my blood."

"I'll tell you one thing, if things keep going the way they are,
its' going to be impossible to buy a weeks groceries for $20."

Have you seen the new cars coming out next year? It won't be long
when $5000 will only buy a used one."

“If cigarettes keep going up in price, I'm going to quit. A quarter
a pack is ridiculous."

"Did you hear the post office is thinking about charging a dime just
to mail a letter?"

"If they raise the minimum wage to $1, nobody will be able to hire
outside help at the store."

"When I first started driving, who would have thought gas would
someday cost 50 cents a gallon. Guess we'd be better off leaving the car
in the garage."

"I'm afraid to send my kids to the movies any more. Ever since they
let Clark Gable get by with saying 'damn' in 'Gone With The Wind,' it
seems every movie has a 'hell' or a 'damn' in it."

"Also, it won't be long until couples are sleeping in the same bed
in the movies. What is this world coming to?"

"Marilyn Monroe is now showing her bra and panties, so apparently
there are no standards anymore."

"Did you see where some baseball player just signed a contract for
$75,000 a year just to play ball? It wouldn't surprise me if someday
they'll be making more than the president."

“Do you suppose television will ever reach our part of the
country?"

"I never thought I'd see the day all our kitchen appliances would
be electric. They are even making electric typewriters now."

"It's too bad things are so tough nowadays. I see where a few
married women are having to work to make ends meet."

"It won't be long before young couples are going to have to hire
someone to watch their kids so they can both work."

"I'm just afraid the Volkswagen car is going to open the door to a
whole lot of foreign business."

"Thank goodness I won't live to see the day when the Government
takes half our income in taxes. I sometimes wonder if we are electing
the best people to congress."

"Why in the world would you want to send your daughter to college?
Isn't she going to get married? It would be different if she could be a
doctor or a lawyer."

"I just hate to see the young people smoking. As I tell my kids,
'Don't take a cigarette from ANYONE. You never know what might be in
it."

"The drive-in restaurant is convenient in nice weather, but I
seriously doubt they will ever catch on."

"If a few idiots want to risk their necks flying across the country
that's fine, but nothing will ever replace trains."

“I don't know about you but if they raise the price of coffee to 15
cents, I'll just have to drink mine at home."

"If they think I'll pay 50 cents for a haircut, forget it. I'll
have my wife learn to cut hair."

"We won't be going out much any more. Our baby sitter informed us
she wants 50 cents an hour. Kids think money grows on trees."

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CFIDS NAME CHANGE
Anne-Marie Vidal,
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“What’s In a Name? PLENTY!”, by Anne-Marie Vidal, , discusses the CFIDS name change controversy that was recently discussed at the CFSCC meeting.

http://www.themestream.com/gspd_browse/browse/view_article.gsp?c_id=300637

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FMS: STUDENT SEEKING VOLUNTEER CORRESPONDENTS
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Dear List,

I am a second year nursing student at the University of Windsor
in Ontario. I am currently writing a paper on fibromyalgia for my
adult health nursing class.

The assignment is for me to correspond by email with people affected by
Fibromyalgia and RN's who have taken care of patients
with this health alteration. These perspectives are
to help me develop an in depth understanding from
different standpoints. The experiential standpoint is
very important to me as your personal experience
living with FM makes one an expert on it.

I also am looking for the clinical perspective to give me an
idea of the care I will provide for these clients in
the future. I am hoping to find at least one RN and
one client by joining this mailing list. Anyone who
is willing to help, your participation would be
greatly appreciated and the work on your part minimal.
All you would have to do would answer basic questions
relating to your experiences, current issues and
treatments and email them back to me. I will then
forward these on to my professor. These questions
will be the basis for my paper.

I really would appreciate anyone's input into this. Thank you for
your time, have a good night! Katie Cumming

Reply to: katie_cumming@yahoo.com
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IMPORTANT MESSAGE:

The Founders of Chronic Fatigue Research France, Inc. would like to thank those of you who have supported us so graciously with your gifts of help to keep the site online and to help us reach our goal to bring up-to-date information to all who need it. We strive to educate the public, the medical community and the new sufferers of these diseases by offering information, chat rooms and message boards to bring us all together. Thank you from the bottom of our hearts!!

Anyone wishing to share in the support of our endeavors may send a tax-deductible donation to the following:

Chronic Fatigue Research France, Inc.

Kathy Tatum
2915 Forest Street
Texarkana, AR. 71854

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OUR WORLD IS BROUGHT TO YOU BY:

-President, Webmaster – Kathy, The
-Recording Secretary – Grace,
-Treasurer - Bonnie,

-Webmaster, Volunteer Coordinator - Sue,
-Editor – Michelle,
-Founders Assistant, Researcher - Cathy,
-Board Member – Mary,
-Board Member -Jan –
-Board Member - Eileen -
-Featured Newsletter Writer – Bonnie,
-Featured Newsletter Writer – Robert,
-Research, Featured Newsletter Writer - Traci -
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**Together We are Making a Difference - Everyone is ALWAYS welcome to help!

<><><><> God Bless and Best Wishes <><><><>

************All of us at FM/CFS World, Inc.*********

Disclaimer: The list owner cannot accept any form of responsibility, legal or otherwise, for the opinions and information presented on this mailing list. All information should be thoroughly examined by a qualified physician, familiar with your health care, prior to commencing any new treatments.

The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, thanks to the website costs being donated, therefore most of our donations will be sent to research for Fibromyalgia and CFIDS cause, treatment and cure.

Any donations to or fundraising receipts received by Chronic Fatigue Research France, Inc. are not used for personal gain by anyone who is a member of the board of directors or the volunteers of Chronic Fatigue Research France, Inc.

Web site hosting by:

The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, therefore most of our donations will be sent to aide in the awareness, and research for Fibromyalgia and CFIDS cause, treatment and cure.

Any donations to or fundraising receipts received by Chronic Fatigue Research France, Inc. are not used for personal gain by anyone who is a member of the board of directors or the volunteers of Chronic Fatigue Research France, Inc.

Information provided on our site presents many views and opinions from all walks of life. This site is not operated nor endorsed by any medical professionals. We are not responsible for any medical or non-professional opinions. No one should rely upon any opinion or comment contained herein for the purposes of medical treatment or attention. You are urged to consult with your physician prior to engaging in any sort of medical treatment that may be suggested through this site. No representation or warranties are made for the content of the opinions or comments and should not be considered as medical advice.