Chronic Fatigue Research France, Inc.

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September 28, 2001

WELCOME TO Chronic Fatigue Research France, INC.  NEWSLETTER

OUR MISSION:

 Chronic Fatigue Research France Inc. is a non-profit organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Syndrome.  Our mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases, through education. ***************************************************************

A CHAT WITH THE EDITOR:

“Footprints on the sands of time are not made by sitting down” ~ Dove chocolate wrapper

I know my source for this saying is out of the ordinary. But most of us have been down the road of chocolate cravings more than once.   For some of us it’s a medicinal remedy. So, I decided, if I am going to indulge anyhow, I may as well get some inspiration out of it at the same time.

Looking at the words though, I couldn’t help but relate them to how many of us react to our illnesses.   We tend to stop moving forward.  We tend to sit down, often finding it difficult to get moving again.  And who’s to blame us? We go through months, often years, searching for a diagnosis.  We go through doctors and tests and spend hours searching the Internet for answers.  When we finally get to the point where we know what we have, we are tired. 

It’s what we choose to do after the sitting down period that makes me take kindly to those words above.  We can’t just keep sitting, hoping that time is going to magically reverse itself. We have to come to terms with our new lives and stand up and try to move forward. We need to put more footprints in the sand.  We still have many, many things to offer the world, our families, our loved ones, our friends, even a stranger down the road.

How do we continue on? One step at a time.  We aren’t out to win any races, we just want to make a showing. Start with one goal for the day.   That’s all it takes to get those footprints started again.

Until next week, I wish you a healthy trail of footprints.

Michelle,  Editor
M32764@aol.com

If anyone would like a copy of the last issue, please email M32764@aol.com and put "last issue" in the Subject line. Thank you.

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DON’T FORGET TO VISIT THE AUCTION!
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Our designer pumpkin is still on the auction block.  If you haven’t had a chance to look at it yet, simply click on the link below.

http://cgi.ebay.com/aw-cgi/eBayISAPI.dll?ViewItem&item=1010122771

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TAKE A MOMENT TO VISIT OUR SITE!
And don’t forget to bookmark the site for future visits.

Chronic Fatigue Research France, Inc.
http://ourfm-cfidsworld.org/

Featured Pages:

News Page
http://ourfm-cfidsworld.org/news.htm

Related Illnesses
http://ourfm-cfidsworld.org/related.htm

NMH
http://ourfm-cfidsworld.org/nmh.htm

Sleep Disorders
http://ourfm-cfidsworld.org/sleepdis.htm

Medicine Assistance Programs
http://ourfm-cfidsworld.org/medicine.htm

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LIKE WHAT YOU SEE? THEN JOIN OUR “FMily”
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You can find a convenient link to subscribe at our site.

Chronic Fatigue Research France, Inc.
http://ourfm-cfidsworld.org/

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NEED TO TALK TO SOMEONE WHO UNDERSTANDS?
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Jan, at Painpal48@aol.com , is willing to listen and offer you support.  Simply drop her a line and she will respond. She is a compassionate, caring woman who has suffered with the ravages of these diseases.

If you need her, she is there for you.

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LEARNING = SUCCESS
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** “Autoimmune or Viral Disease? Consider Vaccine Contamination “

Chronic Fatigue, Fibromyalgia, Arthritis, Asthma, Lupus, Lymes, Depression, Colitis and Diabetes. Chances are good that you, or some one in your family may be suffering from one of these diseases. The incidence of chronic and degenerative disorders has been steadily on the increase in this country over the last several decades. Our society has been somewhat complacent, accepting these conditions as the inevitable consequence of progress and the resulting pollution of our environment.

http://www.mercola.com/1999/aug/15/vaccine_contamination.htm

 

**Disability Attorney Scott E. Davis, specialist in chronic pain and fatigue
cases, discusses the effectiveness of affidavit statements from Family,
Friends and Co-workers in convincing the SSA and judges of the client's
story.

http://go1.warp9ems.com/go.pl?tu=3639077-362

 

** A recent scientific study has shown the medication cyclobenzaprine when
combined with antidepressant medications is an effective treatment for
Fibromyalgia (FM), when antidepressants alone do not lead to a reduction in
FM symptoms.

http://go1.warp9ems.com/go.pl?tu=3639077-363

 

**Anyone who suffers from a long term illness or disability has to learn to cope with the many and varied reactions of others: friends, colleagues, relatives and neighbours. Their family also have to learn strategies for dealing with the reactions of others. These reactions are not always helpful and you can frequently find yourself astounded at the lack of understanding on the part of other people.

http://www.suite101.com/article.cfm/15672/80550

 

**Misuse of Pain Drug Linked to Hearing Loss

 Doctors in L.A. and elsewhere have identified at least 48 cases of deafness tied to prolonged misuse of Vicodin and other comparable prescription medicines.

http://www.latimes.com/features/health/la-091001vicodin.story

 

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SOCIAL SECURITY
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Benefit Eligibility Screening Tool

Social Security administers several different benefit programs. BEST is a screening tool designed to help you identify all the benefits you may be eligible for from those programs. For most people, it should not take more than 5 to 10 minutes to use this tool.

http://best.ssa.gov/

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CLINICAL TRIALS
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Studies currently recruiting patients with CFS or related conditions

New York Medical College Seeks Adolescents with CFS

University of Iowa, Invitations to Participate in CFS Treatment Research

Johns Hopkins Seeks Gulf War Illness Patients

North Carolina Center Seeks FM Patients with Insomnia

University of Miami Seeks CFS Patients

University of Washington Seeks Physicians with CFS or FM

University of Washington Seeks Twins with CFS or FM 

New Jersey CFS/FM Center Seeks Adults with CFS or FM

University of Washington Seeks Women with Fibromyalgia

Maryland Study Seeks Adults with FM

University of Alabama at Birmingham Seeks Women with CFS or FM

To learn more:

http://www.cfids.org/about-cfids/clinical-trials.asp#listing

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THE WORLD REACTS
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This is a very touching site, showing that the United States does not stand alone in its sorrows over the recent tragedy.

http://wtc-tribute.rtx1.com/index.html

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THE MEDICINE OF LAUGHTER AND INSPIRATION
“There’s no fun in medicine, but there’s a lot of medicine in fun.” ~ Anonymous
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Two Elderly Ladies At Tea

Two elderly women were fussing about their husbands over tea one day.

"I do wish my Leroy would stop biting his nails. That makes me terribly nervous!" the first one said.

"Oh, my Elmer used to do the same thing," the other woman commented. "But I broke him of that habit real quick."

"What did you do?"

"I hid his teeth!"

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RHABDOMYOLYSIS
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**When Exercise Goes Awry: Exertional Rhabdomyolysis

Exertional rhabdomyolysis occurs when exercise, often of the eccentric type, damages myofibrils and sarcolemma, with release of the enzyme creatine kinase and pigmented myoglobin into the serum. Severe muscle soreness and dark urine are the hallmark symptoms, and renal failure may develop.

http://www.sma.org/smj/97may19.htm

 

**Symptoms    

abnormal urine color (dark, red, or cola colored)
muscle tenderness
weakness of the affected muscle(s)
generalized weakness
muscle stiffness or aching (myalgia)

Additional symptoms that may be associated with this disease:

weight gain (unintentional)
seizures
joint pain
fatigue

Signs and tests 

An examination reveals tender or damaged skeletal muscles.

http://www.nlm.nih.gov/medlineplus/ency/article/000473.htm#symptoms

 

**Rhabdomyolysis is a common disorder which may result from a large variety of diseases, trauma, or toxic insults to skeletal muscle.

http://members.tripod.com/~baggas/rhabdo.html

 

**Causes: The etiologies may be subdivided into traumatic, exercise induced, toxicologic, environmental, metabolic, infectious, immunologic, and inherited classifications.

http://www.emedicine.com/emerg/topic508.htm

 

** “Rhabdomyolysis: Taking it one day at a time”

Answers to questions about rhabdomyolysis

http://www.spiralnotebook.org/rhabdomyolysis/

 

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IMPORTANT MESSAGE:

The Founders of Chronic Fatigue Research France, Inc. would like to thank those of you who have supported us so graciously with your gifts of help to keep the site online and to help us reach our goal to bring up-to-date information to all who need it.  We strive to educate the public, the medical community and the new sufferers of these diseases by offering information, chat rooms and message boards to bring us all together.  Thank you from the bottom of our hearts!!

Anyone wishing to share in the support of our endeavors may send a tax-deductible donation to the following:

Chronic Fatigue Research France, Inc.

Kathy Tatum
2915 Forest Street
Texarkana, AR. 71854

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OUR WORLD IS BROUGHT TO YOU BY:

-President – Kathy,
-Vice President, Editor – Michelle,

-Treasurer, Recording Secretary - Bonnie, 
-Webmaster, Volunteer Coordinator - Sue,

-Board Member– Grace,

.com-Board Member – Mary, 

-Board Member -Jan –

-Board Member - Eileen -

-Featured Newsletter Writer – Robert,

-Research - Traci - davis26@earthlink.net

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**Together We are Making a Difference  - Everyone is ALWAYS welcome to help!

<><><><> God Bless and Best Wishes <><><><>
************All of us at FM/CFS World, Inc.*********

Disclaimer: The list owner cannot accept any form of responsibility, legal or otherwise, for the opinions and information presented on this mailing list.  All information should be thoroughly examined by a qualified physician, familiar with your health care, prior to commencing any new treatments.

 

 

 

Copyright©2002 Our FM/CFIDS World, Organization. All rights reserved.

The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, thanks to the website costs being donated, therefore most of our donations will be sent to research for Fibromyalgia and CFIDS cause, treatment and cure.

Any donations to or fundraising receipts received by Chronic Fatigue Research France, Inc. are not used for personal gain by anyone who is a member of the board of directors or the volunteers of Chronic Fatigue Research France, Inc.

Web site hosting by:

Copyright©2005 Our FM/CFIDS World, Organization. All rights reserved.

The ongoing business of Chronic Fatigue Research France, Inc. is possible by the public in monetary donations and website sponsorship. Our bills are very few, therefore most of our donations will be sent to aide in the awareness, and research for Fibromyalgia and CFIDS cause, treatment and cure.

Any donations to or fundraising receipts received by Chronic Fatigue Research France, Inc. are not used for personal gain by anyone who is a member of the board of directors or the volunteers of Chronic Fatigue Research France, Inc.

Information provided on our site presents many views and opinions from all walks of life.  This site is not operated nor endorsed by any medical professionals. We are not responsible for any medical or non-professional opinions. No one should rely upon any opinion or comment contained herein for the purposes of medical treatment or attention. You are urged to consult with your physician prior to engaging in any sort of medical treatment that may be suggested through this site. No representation or warranties are made for the content of the opinions or comments and should not be considered as medical advice.